When you look at her, she is like any other normal child. Playful, beautiful and full of energy. But it is only after you have spoken to her that you will know that four-year old Kimberly Nanjalla Adella, 4, has speaking and hearing challenges
Kimberly Nanjalla Adella cannot hear or speak. She needs to go through a Shs110m procedure that will help to correct the impairments.
From a distance it is hard to know that Kimberly Nanjalla Adella can neither speak or hear. It has been like this since childhood. But there is hope. Her impairments could be corrected through a Shs110m procedure.
“She was like any normal child, but when she was eight months, she got a series of high temperatures. She was tested for malaria but the results came out negative. However, the doctor observed she had pain in the ear and prescribed an eardrop, which we got and a few days after, she was fine,” explains Imma Kamugabo, 27, Nanjalla’s mother. At the time when other children of her age were talking, or at least trying to imitate some words, Nanjalla kept mum all through failing to utter even a single word. This is when Kamugabo begun getting concerned. “By last year, I was fully aware that my child had a hearing problem. So I took her to a specialist at the Children’s Medical Centre, Bugolobi. He was also surprised that such a sharp child (in his observation) had not started talking. It is from here that I was referred to Kampala Audiology and Speech Centre for an ear examination – Otoscopy,” she explains.
At the centre, audiologist Fiona Kamya, in her October 28, 2015 medical report concluded that results suggested there was profound Sensorineural hearing loss in both ears, recommending that Nanjalla learns an alternative form of communication and repeat hearing loss assessment at school-going age.
Since then, a number of medical interventions have been undertaken to reduce the effects of that condition.
“The test also indicated that her middle hear was blocked with fluids. We then took her to Nsambya hospital where they gave her treatment to help remove the fluids for 21days. This, however, did not aid her hearing. We then took her to International Hospital Kampala for a telescope ear cleaning but it didn’t help either.
“Also, sometime this year, there were donations of hearing aids at Ntinda School for the Deaf and we managed to get her a pair. With the hearing aids, there was a slight difference, because now, she could hear her name when you called, but still, you have to use a high pitch. She can only hear if the sound is more than 90 per cent,” Kamugabo explains.
Delayed hearing Nanjalla is currently attending kindergarten at Chosen Children’s Centre in Ganda, Nassana Municipality but her speech is delayed and she is unable to hear, even with hearing devices. She plays normally with her fellow children and tries to communicate with indistinct sounds and little sign language.
At the beginning of this year, there was some light hope of restoring Nanjalla’s ability to hear when she was referred by International Hospital Kampala to Agha Khan University Hospital Nairobi. While there she also underwent a number of tests at Nairobi Audiology Centre to test her ability to hear.
In her report, consultant audiologist, Serah Ndegwa said Nanjalla had profound hearing loss bilaterally, which needed a cochlear implant.
A cochlear implant is an electronic device that replaces the function of a damaged inner ear. Unlike hearing aids, which make sounds louder, cochlear implants do the work of damaged parts of the inner ear (cochlea) to provide sound signals to the brain.
Remedy Dr M. F. Din of Agha Khan University Hospital, who is also currently managing Nanjalla’s condition, says that a cochlear implant has the ability to help in cases where hearing aids have failed.
Other tests run also show that there is no other abnormality with her brain or nervous system, which gives confidence that implants are a viable option in this case.
“However, the total sum of money needed is too overwhelming for us, since we have spent a lot of money already on her medical treatment,” Kamugabo says with her eyes getting teary.
Nanjalla needs Shs110m to undergo the needed operation, which will include a cochlear implant, pre and post surgery services. At four years , the doctor says Nanjalla needs to get the implants within six months.
Project by Kamugabo Imma
raised of $32,352.00
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This Campaign will receive all of the funds invested by 10 November 2016.